1. I finally got hold of my final pathology report. The thing on my (now absent) kidney was a synovial sarcoma.
2. There was no staging on the report--this was a bit frustrating but hopefully will get cleared up sometime next week.
3. Evidently, renal synovial sarcoma is pretty rare. We've only found about 20 cases in English medical literature from 1999 (when it was first identified versus renal cell carcinoma) to 2005.
4. If nothing else, this confirms just how special I am...but you all knew that anyway!
5. I learned that this a really depressing thing to google.
6. As a result of some of this 'net surfing, I spent some time being ticked at God (don't worry, He can handle it), some time eating foods that are really bad for me, and some time pouting.
7. I also made sure that there were actually pictures of ME in the shots we took on Halloween.
8. I dealt with some incredibly rude people. I'm particularly butting heads with some receptionist at the oncologist's office and have had to make no less than six phone calls to make sure the paper trail is connected and I actually GET to see the doctor sometime soon. ARGH!
9. I was blessed by some amazingly kind people. We sent out an appeal for help with soccer carpool for my eldest...and had four responses (out of seven other families on the team) in less than an hour.
10. My six year old dd asked me, "Mommy, why do you like lying down so much?".
11. I've been re-establishing my authority with this same kiddo all week...a little acting out?
12. Our microwave died, I got to by two new pair of glasses for my son (sports goggles and specs--and his last 'script' was less than a year ago!), and one new pair for my daughter (who lost hers while switching glasses for soccer). Life certainly does go on...I suppose this could be considered almost "normal" at our house!
13. I got to drive again today! My mom leaves Sunday, but I can't lift for two weeks still...so the little one is learning how to use stepstools to get in and out of our SUV and into his carseat.
7 Comments:
HI,
I hope tyou are feeling better...I enjoyed your list very much and that is an adorable photo of the children. I laughed when you said you made sure you got in some of the pictures too.
Make sure to de-stress. Meditate and pray with a candle I say this because when you're a mum, it's easy to forget that healing also hapens not just through medicine but inside us too. Mkae sure to de-stress to keep your immune system strong to fight okay?
Again enjoyed your list, here is mine:
http://gnosticminx.blogspot.com/2006/11/thirteen-favourite-words.html
Heather - Just a friendly reminder: If you need ANYTHING, give us a call (even if you just need to pick up Michael!)
So glad to hear things are beginning to get back to normal!
Keith & Kathy
Heather,
I am sure it feels good to start getting some answers.
I remember googling Dh's diagnosis a few years back and being totally startled by the reality of it all. It can be a real eye-opener about just how precious life is.
May God grant you peace and strength as you continue on this journey.
Blessings.
Susan
Thanks for stopping by Heather. You were in my prayers here in Ohio. I'll continue to pray that you find all of the answers that you need to continue to heal. From my own experience I know how frightening it can be when you begin reading case studies of people who have the same thing you have. Continue to hold fast to God and remember He can handle all...especially at the times when we can't. Wishing you many blessings, Lynn
p.s. right now DS and 5 of his 12-13 year old frends are "jamming" to Smoke on the Water....some playstation game that involves guitars as the controls.....I'm way out of the loop, I think!
Heather,
You are in my prayers many, many times a day.
Love you,
Laurie
I'm sorry you've had such a crummy week. You know how to find me if you need to vent or want some words of encouragement. Sorry I'm too far away to be of any practical help, but my friendship is always here!
Heather,
I just wanted to stop by and check on you and tell you that I'm praying for you.
Love,
Julie D.
Post a Comment
<< Home